I have worked as a physiotherapist within the NHS and have been a FCP since 2018, and also provide secondary care clinics for patients with Axial SpA as part of my Clinical Specialist MSK Physiotherapist role. I have also been involved in the Abergavenny NASS group for many years which has re-started post-Covid. These varied experiences have provided different insights into the challenges of Axial SpA recognition, diagnosis and management and also the lived experience from newly diagnosed to well established disease.
I have heard many patient stories of years of frustration to receiving a diagnosis (of axial SpA, Ankylosing Spondylitis or AS) and the impact on their life, and also more positive stories of early recognition, referral and diagnosis. From working as a FCP I also further understand the challenges in primary care, so this programme provided an ideal opportunity to try an influence recognition and the patient pathway.
“Through this programme I hope I can increase awareness of this condition in primary care and enable easier recognition and appropriate referral to secondary care services, ultimately contributing to a reduction in delay to diagnosis.”
For information, advice and to join a community of people who live with the condition visit the NASS website. Or visit our helpline.
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