NASS Gold Standard research

NASS Gold Standard research

As part of our policy and campaigning work we have commissioned research to help build the burning platform and influencing policy makers and health care professionals as we target a social movement. A social movement which will ultimately catalyse driving down diagnostic delay.

Want to find out more?

Read our first Act on axial SpA impact report

Interested in our work to drive down diagnostic delay. Then click the button below and download a copy of our first impact report.

The report details the key results from the programme in its first 16 months, detailing how NASS has built a burning platform for driving down the diagnosis time of axial SpA, influenced politicians and key decision makers and increased awareness of the condition among the general public and health care professionals. 

Health Economics infographic

Economic cost of delayed diagnosis in axial SpA

Economic cost of delayed diagnosis in axial SpA

New research shows that the UK is paying an unnecessarily high price for the delays in diagnosing axial spondyloarthritis (axial SpA).

Axial SpA is a painful form of inflammatory arthritis that affects 1 in 200 UK adults. It starts young, with people often experiencing symptoms from their mid-teens to early 20s.

Currently, people wait an average of 8.5 years for a diagnosis and the research shows that:

  • This delay costs the economy an estimated £18.7 billion per year
  • patient aged 26 who waits 8.5 years for a diagnosis is likely to lose around £187,000
  • By driving down the average diagnosis time to one year, the UK economy could save £167,000 per person.

The study has been commissioned by the National Axial Spondyloarthritis Society (NASS) and released for World Arthritis Day.

Cost of Delayed Diagnosis Modelling and Planning Tool

Cost of Delayed Diagnosis Modelling and Planning Tool

Commissioned by NASS, Health Economics Consulting (HEC) undertook the research to create a new health economics model to assess the cost of delayed diagnosis, up to the point of diagnosis of axial SpA by combining healthcare, out of pocket costs and productivity costs/losses.

HEC considered the best way to model the potential cost and established that a Markov Chain model process was the most effective in representing the NASS Act on Axial SpA campaign aiming to drive down the time to diagnosis.

Read here an overview of the model and how you can request access or ask more.

Symptoms starting slowly

Pain in the lower back

Improves with movement

Night time waking

Early onset (under 40)