Peer to Peer network and HCP toolkit
Peer to Peer network and HCP toolkit
As part of our Act on axial SpA campaign we want to build a sustainable support network for Health Care Professionals who are working in support of the campaign, delivering change and promoting the provision of axial SpA care. Use this page to read about how you can get involved, be part of the peer to peer network and use our toolkit of resources aimed at helping you in your role. Please reach out to the team for more information: clareclark@nass.co.uk
Act on Axial SpA awards
Act on Axial SpA awards
Are you an axial SpA Changemaker?
As part of the Act on Axial SpA campaign, NASS have a created a brand new award to recognise the great work that health professionals are doing to reduce the time to diagnosis.
Applications for the first round closed at the end of October 2023 please keep an eye for details on applications opening for the 2nd round.
Email clareclark@nass.co.uk for more information.
Click here to read about our first set of winners.
Join our peer to peer network
NASS has set up a network open to any healthcare professional working in Axial SpA either within the NHS or Private Practice. This multi-professional network is a structured but informal group which provides the opportunity to share information, knowledge, skills, prospectives and ideas on how to approach issues relating to axial SpA
Webinars are held monthly alternating between lunchtimes (12.30pm – 1.30pm) and evenings (6pm –7pm) These consist of a 20min presentation from a healthcare professional with time for questions as well as discussion and network opportunities to explore other collective issues around axial SpA, particularly education and delay to diagnosis. The webinar provides a safe space for discussions and is not recorded thereby enabling people to feel free to discuss barriers as well as things that are going well.
Following the meeting an email is sent out to the network with a copy of the presentation, any accompanying links and discussion points raised so that people who were not able to attend are kept informed.
Sign up here to join our community or email clareclark@nass.co.uk for more information.
View our toolkit for Health Care Professionals
View our toolkit for Health Care Professionals
We have been developing a toolkit of resources to help you as Health Care Professionals with improving axial SpA care and driving down diagnostic delay.
Here is where you will find all the tools, presentations, posters and other materials in one place.
Please use them in your work.
NASS is also able to provide copies of any of the materials you would like, please email clareclark@nass.co.uk with any requests.
ACT ON AXIAL SpA:
A Gold Standard time to diagnosis
The current time to diagnosis of axial SpA in the UK averages approximately 8.5 years from symptom onset. This delay is unacceptable and has serious consequences for the patient. Our act on axial SpA campaign sets out a roadmap for reducing the time from symptom onset to diagnosis to just one year.
Symptoms starting slowly
Pain in the lower back
Improves with movement
Night time waking
Early onset (under 40)
