Peer to Peer network and HCP toolkit

Peer to Peer network and HCP toolkit

As part of our Act on axial SpA campaign we want to build a sustainable support network for Health Care Professionals who are working in support of the campaign, delivering change and promoting the provision of axial SpA care. Use this page to read about how you can get involved, be part of the peer to peer network and use our toolkit of resources aimed at helping you in your role. Please reach out to the team for more information: clareclark@nass.co.uk

Act on Axial SpA awards

Act on Axial SpA awards

Are you an axial SpA Changemaker?

As part of the Act on Axial SpA campaign, NASS have a created a brand new award to recognise the great work that health professionals are doing to reduce the time to diagnosis.

Click here to apply or email clareclark@nass.co.uk for more information.

Join our peer to peer network

NASS has set up a peer to peer network open to any healthcare professional working in axial SpA, whether in the NHS or private practice

It’s an informal but structured group, providing the opportunity to link with others, share good practice and discuss ideas. 

There are two ways to be involved: we’ll be holding webinars in May and October, plus quarterly newsletters in Spring, Summer, Autumn and Winter.

Sign up here to join our community or email clareclark@nass.co.uk for more information.

NASS poster with QR

View our toolkit for Health Care Professionals

View our toolkit for Health Care Professionals

We have been developing a toolkit of resources to help you as Health Care Professionals with improving axial SpA care and driving down diagnsotic delay. 

Here is where you will find all the tools, presentations, posters and other materials in one place.

Please use them in your work.

NASS is also able to provide copies of any of the materials you would like, please email clareclark@nass.co.uk with any requests.

ACT ON AXIAL SpA:

A Gold Standard time to diagnosis

The current time to diagnosis of axial SpA in the UK averages approximately 8.5 years from symptom onset. This delay is unacceptable and has serious consequences for the patient. Our act on axial SpA campaign sets out a roadmap for reducing the time from symptom onset to diagnosis to just one year. 

Symptoms starting slowly

Pain in the lower back

Improves with movement

Night time waking

Early onset (under 40)